10:16AM -- Well, I thought I should update everyone on how things are here since he is still asleep. Larry and I had visitors over the last weekend. Lyn and Alyce came up from SC. Larry and I both enjoyed the visit and I took my Paxil to make sure Lyn and Alyce would too. I swear I sometimes believe I'm bipolar. Anyway, I got a few pictures taken and I'll post them here in the next day or so. Larry is doing okay for the most part. He still sleeps a lot, and deals with pain and nausea on a daily basis. He's begun complaining with a belly ache. He didn't go to dialysis yesterday (Tuesday, 09/24) because he didn't want to go. His ending b/p last Saturday at dialysis was 124/64, I think. I'll check with the techs tomorrow. His ending weight was 87.9 kilos, so he's still losing weight. Larry and I talked about getting him a hospital bed the other night...he initiated the discussion. So, Thursday (09/25 -- tomorrow), Hospice will deliver the bed. I'll be moving around and cleaning the carpet in our bedroom at some point today...if I can get myself motivated. Then, while Larry is at dialysis Thursday, I'll dismantle the bed and move it downstairs. I'll be moving the roll-away bed into our bedroom, or bring the single bed up from the garage for me. Not decided yet, but I still have a little time. Maybe do both.
Okay...Larry is having skin breakdowns, and this includes the sacral wound (bedsore). He's been on an antibiotic for several days now. One is on his heel which advanced 2 weeks ago to under his ankle. That one is healing and I had dialysis run a culture on it last week to make sure it was okay. He also has one on the back of his right upper thigh; an irritation in a similar location on the left thigh; one small one that is healing nicely on the lower front of his calf; and the bedsore. I'm cleaning, applying silverdine, or acquacel, or honey to the areas. Yesterday, I had him out of his pants/depends so the bedsore could get some "air". It looked better last night before I bandaged it. Larry is weak...hence the hospital bed. It takes me pulling him into the van to do to dialysis or other appts. I have to help him sit up and to lift his legs into bed. We have increased his Dilaudid from 4ml every 2 hours to 6ml. If his pain is really bad, I can give him 8ml every 2 hours. Hospice instructed me to give him Dilaudid even if there isn't any pain in an effort to prevent severe pain...preventative treatment. I've been doing that once each morning and then as an as needed basis per Larry's needs.
I'm antsy today. I'll write more later...
Wednesday, September 24, 2008
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